The questionnaire included 10 questions, all of which had YES/NO answers. However, some people answered with a sentence, rather than just a YES or a NO. Where that happened, the project looked at what had been written and worked out, as far as possible, whether the answer should be counted as a YES or a NO.
For each question, we have counted up how many answers were YES, and how many answers were NO.
Mainly Yes = More than 75% of answers were YES
More Yes than No = Between 60-75% of answers were YES
Mainly No = More than 75% of answers were NO
More No then Yes = Between 60-75% of answers were NO
Some Yes and some No = There were about the same number of YES and NO answers
| How much people said they knew about their information and how it is used and looked after. | Adults of working age | Older people | Carers | Journey Enterprises | |
|---|---|---|---|---|---|
| 1. Do you know what types of personal information are held by your care provider about you/your relative? | Mainly yes | More no than yes | More yes than no | Mainly yes | |
| 2. Do you know how to find out what types of information the care provider holds about you/your relative? | More no than yes | More no than yes | More yes than no | Mainly yes | |
| 4. Do you know who your information may be shared with? | Mainly yes | Mainly no | Some yes and some no | More yes than no | |
| 7. Do you know how to check that the information they have is safe? | More no than yes | Mainly no | Mainly no | Some yes and some no | |
| 10. Do you know to whom you should report any concerns you may have about cyber security? (*) | Some yes and some no | Mainly no | More no than yes | More yes than no |
Summary: Older people generally said they did not know about their information or how it is used and looked after by their care service. Younger adults and carers knew a bit more. The people who said they know most were those supported by Journey Enterprises.
*The full text of question 10 was “Do you know to whom you should report any concerns you may have about cyber security (i.e. the safety of your personal information held by your care provider)?”
| Whether people had been told about what their information is used for and how it is looked after. | Adults of working age | Older people | Carers | Journey Enterprises | |
|---|---|---|---|---|---|
| 3. Have they told you what they use that information for? | More no than yes | Mainly no | Mainly no | More yes than no | |
| 5. Have they told you what they do to keep your information safe? | Some yes and some no | Mainly no | Mainly no | More yes than no |
Summary: Older people and carers mainly said that they had not been told what their care service uses their information for, or how they look after it. Some younger adults said they had been told this. The people who most often said they had been told this were those supported by Journey Enterprises.
| People’s feelings and opinions | Adults of working age | Older people | Carers | Journey Enterprises | |
|---|---|---|---|---|---|
| 6. Is this something you have ever thought, or worried, about before reading this questionnaire? | More no than yes | Mainly no | Mainly no | Some yes and some no | |
| 6a. Would information safety influence your choice of care provider in the future? | Mainly yes | More yes than no | More yes than no | Did not include this item | |
| 9. Do you feel in control of your information? | More no than yes | Mainly no | Mainly no | More yes than no | |
| 8. Would you like help or guidance about to how to check that the information they have is safe? | Mainly yes | Mainly no | More yes than no | Mainly yes |
Summary: Most people, particularly older people and carers, said that this was not something that they had ever thought about or worried about before. However, most people said that it was now something that would influence their choice of care provider in future and, apart from older people, most people said that they would like guidance about how to check that their information is safe. Apart from people supported by Journey Enterprises, most people said that they did not currently feel in control of their information.
